Walk ‘n’ Wheel for LGS Research

Getting involved virtually is simple and easy! As a virtual walker, runner, or rider, you’ll join hundreds of other participants across the country with the freedom to take part in whatever capacity you can!

• Create Your Personal Fundraiser to be signed up as a virtual walker and help support our mission
• Order your Official Walk T-shirt and/or hoodie before April 1st
• Share on Social to raise awareness and follow the LGS Foundation to stay connected

If you have any questions about how to get involved virtually, don't hesitate to email us at info@lgsfoundation.org.

Stay connected and in the loop by liking and sharing the LGS Foundation's Facebook page for all the latest announcements, contests, and prizes leading up the walk and the day of our event.

We’d love to see your excitement about the Walk ‘n’ Wheel! Don’t forget to post about your participation on your personal social media accounts to share the excitement with your friends and family. We've even created some images you can personalize in Canva and share.

Share your photos and videos with us by tagging on Facebook, Instagram, and X. Using hashtags is another great way for us to find your posts—so be sure to include #WalkForLGS when you share!

In-person event participants will receive a complimentary #WalkForLGS t-shirt. Shirts can be picked up at the in-person location you are registered at.

Not attending in-person, but would still like a t-shirt? 

Earn exciting prizes while raising awareness! Our fundraising prizes are cumulative, meaning you can earn all three prizes as you hit each goal.

These exclusive prizes are available only to personal fundraisers who reach the following milestones — they cannot be purchased:

To qualify, all donations must be made through your personal fundraising page or mailed directly to the LGS Foundation with a note specifying the fundraiser they should be credited to. Note: Facebook fundraisers and corporate matching gifts are not eligible for this contest.

The deadline to receive donations is April 30, 2025. Prizes will be shipped in May 2025.

Fundraising for a cause that hits close to home doesn’t have to be difficult—especially when you have the right tools!

Create, customize, and share your personal fundraising page with your community - friends, family, coworkers, etc. 

And don't forget to check out our FUNDRAISING TOOLKIT, packed with expert tips, best practices, and creative tricks to help you raise critical funds and spread awareness for Lennox-Gastaut Syndrome (LGS).

Let’s make a big impact together!

Your fundraising efforts play a crucial role in supporting the programs and research dedicated to Lennox-Gastaut Syndrome (LGS). The funds you raise help:

• Fuel Research: Your contributions directly support critical research into better treatments, therapies, and ultimately, a cure for LGS.
  • This year, we are making LGS research history by uniting leading experts to create formal recommendations that will establish a standard of care for Lennox-Gastaut Syndrome (LGS). This consensus opinion will optimize treatment, provide a clear roadmap for patients, and serve as a vital stepping stone in LGS research.

• Increase Awareness: By spreading the word, you're helping increase understanding of LGS, which is essential for better diagnosis, care, and support for families affected by the condition.

Every dollar you raise makes a real difference in improving the lives of those impacted by LGS!

We offer several ways to get involved:

• Volunteer at an in-person event. Contact Kayleigh@LGSFoundation.org for volunteer information.
• Like and share the LGS Foundation's Social Media Pages. 
• Become a sponsor. Contact giving@lgsfoundation.org for sponsorship information. 
• Donate to support our fundraising efforts. Click here to give now.

View Event Photos on Facebook

Thank you supporting our

8th Annual Walk 'n' Wheel for LGS

With your help, we've raised over $44k for LGS Research, putting us at 73% of our $60k goal.

Keep the momentum going! There is still time to be part of funding life changing research. 

Give Now to support LGS Research

The LGS Foundation held its 7th Annual Walk ‘n’ Wheel for Lennox-Gastaut Syndrome on March 26th, 2022 to raise awareness and increase funding to accelerate research on Lennox-Gastaut Syndrome (LGS), a rare and often debilitating form of early-onset epilepsy. Approximately 1,000,000 children and adults worldwide have LGS.

The 2022 annual #WalkForLGS raised over $48,000, nearly 78% of our $60k fundraising goal!

​Although great strides have been made, more work needs to be done.

We are not done yet…

With only a tiny fraction of public and private funds going towards research on LGS, families of the more than one million people with LGS worldwide worry that lifesaving, stabilizing treatment may not come to fruition in their loved ones lifetime. The LGS Foundation’s Cure LGS 365 Research Grants Program is combating these fears.

Hundreds of  LGS families and community members came together on June 5th, 2021 to Step Towards a Cure for LGS! Together our community pledged Over 1 Million Steps and Raised Over $60,000 for Research into Lennox-Gastaut Syndrome.

Watch the 2021 Walk Video