Stepping Together for a Breakthrough!
Thank You for Making the 10th Annual Walk ‘n’ Wheel for LGS Research a Success!
We are deeply grateful to everyone who joined us as we Stepped Together for a Breakthrough at the 10th Annual Walk ‘n’ Wheel for LGS Research on April 26, 2025.
Thanks to your incredible support, we raised over $35,000 to fund the Consensus Opinion Project—an initiative uniting leading experts to develop formal recommendations that will establish a standard of care for Lennox-Gastaut Syndrome (LGS). This work is a crucial step forward in optimizing treatment, providing a clear roadmap for patients, and advancing LGS research.
Together, we are making meaningful strides toward a breakthrough in LGS care and shaping a better future for our loved ones living with this complex disorder.
View Photos from Our In-Person Events Online
Support Ongoing Research Efforts
All proceeds from the Walk ‘n’ Wheel benefit the “Finding the Cures, Together” Research Program. This vital program drives cutting-edge, patient-led research that leads to new therapies and treatments for those impacted by LGS.
GIVE NOW TO SUPPORT LGS RESEARCH
Each year, hundreds of community members come together for our annual Walk ‘n’ Wheel, raising awareness for LGS and supporting the LGS Foundation’s “Finding the Cures, Together” Research Program. With only a small fraction of public and private funding dedicated to LGS research, families of the more than one million people living with LGS worldwide fear that lifesaving treatments may not come in their loved ones’ lifetimes. We are here to change that.
Previous Walk ‘n’ Wheels
Thank you supporting our
8th Annual Walk 'n' Wheel for LGS
With your help, we've raised over $44k for LGS Research, putting us at 73% of our $60k goal.
Keep the momentum going! There is still time to be part of funding life changing research.
The LGS Foundation held its 7th Annual Walk ‘n’ Wheel for Lennox-Gastaut Syndrome on March 26th, 2022 to raise awareness and increase funding to accelerate research on Lennox-Gastaut Syndrome (LGS), a rare and often debilitating form of early-onset epilepsy. Approximately 1,000,000 children and adults worldwide have LGS.
The 2022 annual #WalkForLGS raised over $48,000, nearly 78% of our $60k fundraising goal!
Although great strides have been made, more work needs to be done.
We are not done yet…
With only a tiny fraction of public and private funds going towards research on LGS, families of the more than one million people with LGS worldwide worry that lifesaving, stabilizing treatment may not come to fruition in their loved ones lifetime. The LGS Foundation’s Cure LGS 365 Research Grants Program is combating these fears.
Hundreds of LGS families and community members came together on June 5th, 2021 to Step Towards a Cure for LGS! Together our community pledged Over 1 Million Steps and Raised Over $60,000 for Research into Lennox-Gastaut Syndrome.
Watch the 2021 Walk Video
Updated 05/01/25 (KK)