About LGS
- Like many rare conditions, Lennox-Gastaut Syndrome can be a complete mystery when you first hear about it. Explore this section to get a thorough understanding of LGS—including its causes, symptoms, diagnosis and treatment.
New to LGS
- A diagnosis of LGS is deeply unsettling and can leave you at a loss as to where to turn for help and guidance. We’re here for you. In this section you will find information, resources, and communities of support for the challenging road ahead.
For Families
- If a loved one is living with LGS, the entire family shares in the difficult journey. How can you keep them safe? Find appropriate medical care? Get the support you need? This section gives answers to these and other critical questions.
About Research
- Even as our understanding of LGS grows, there is so much more to learn. From research grants to conferences, from publications to voice of the patient family, this section provides avenues for furthering your knowledge and impact.
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- Host a fundraiser. Volunteer at an event. Shop our LGS store. These are just some of the ways you can lend your personal support to our mission. Check out this section to get started.
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Home / Latest News / Savannah, Forever in Our Hearts

Savannah, Forever in Our Hearts

Savannah’s spirit will forever live on in the hearts of all who had the honor of knowing and loving her!

The LGS Foundation and our entire community are deeply saddened by the news of the passing of Savannah, the beloved daughter of our Executive Director, Tracy Dixon-Salazar. Savannah’s spirit will forever live on in the hearts of all who had the honor of knowing and loving her. She brought immense joy to everyone around her, and her memory will continue to inspire the work we do every day.

This is an incredibly difficult time for Tracy, Ruben, and their entire family. Our hearts are with them as they navigate this unimaginable loss. We kindly ask that you keep Tracy and her family in your thoughts, offering them love, comfort, and strength as they face this heartbreaking moment. We are grateful for your kindness and compassion!

03/21/25 (AM)