For Families Archives - Page 2 of 2

About LGS
- Like many rare conditions, Lennox-Gastaut Syndrome can be a complete mystery when you first hear about it. Explore this section to get a thorough understanding of LGS—including its causes, symptoms, diagnosis and treatment.
New to LGS
- A diagnosis of LGS is deeply unsettling and can leave you at a loss as to where to turn for help and guidance. We’re here for you. In this section you will find information, resources, and communities of support for the challenging road ahead.
For Families
- If a loved one is living with LGS, the entire family shares in the difficult journey. How can you keep them safe? Find appropriate medical care? Get the support you need? This section gives answers to these and other critical questions.
About Research
- Even as our understanding of LGS grows, there is so much more to learn. From research grants to conferences, from publications to voice of the patient family, this section provides avenues for furthering your knowledge and impact.
Get Involved
- Host a fundraiser. Volunteer at an event. Shop our LGS store. These are just some of the ways you can lend your personal support to our mission. Check out this section to get started.
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Join Our Support Communities & Support Groups

Looking for support? Meet thousands of others who understand what it is like to live with lGS. You’re Not Alone. The LGS Foundation moderates several social network groups for those affected by LGS. Get the emotional support you need from…

Connect with an LGS Patient Navigator or Family Ambassador

Your situation is unique, but it doesn’t need to be isolating. The LGS Foundation firmly believes that everyone living with LGS should have access to the information, resources, and support they deserve. Furthermore, this includes information on how to connect…