Karen H. Groff, M.Ed.

Board Chair

Columbus, OH

Karen is a retired educator. As a teacher, elementary principal, and staff development coordinator, she worked tirelessly to inspire and empower children, families, and staff to realize their full potential. 

She, her husband, Jeff, and two children, Daniel and Jessica, reside in Columbus, Ohio. Karen and Jeff work hard to create a loving and inclusive extended family that honors and supports Danny, an individual with LGS and Type 1 Diabetes. They worked with Lundbeck’s LGS Together initiative to create educational media for families impacted by LGS. Karen also served as an Ohio Ambassador for the LGS Foundation for many years.

In her spare time, Karen enjoys gardening, reading, and writing.

Karen currently serves as President of the LGS Foundation’s Board of Directors. She believes the role of the Board is to ensure that the LGS Foundation continues to maintain a community of support, resources, research, and care worldwide. She enjoys serving the LGS community in ways that create hope for those affected by LGS.

Learn More About Our Board of Directors here.