About LGS
- Like many rare conditions, Lennox-Gastaut Syndrome can be a complete mystery when you first hear about it. Explore this section to get a thorough understanding of LGS—including its causes, symptoms, diagnosis and treatment.
New to LGS
- A diagnosis of LGS is deeply unsettling and can leave you at a loss as to where to turn for help and guidance. We’re here for you. In this section you will find information, resources, and communities of support for the challenging road ahead.
For Families
- If a loved one is living with LGS, the entire family shares in the difficult journey. How can you keep them safe? Find appropriate medical care? Get the support you need? This section gives answers to these and other critical questions.
About Research
- Even as our understanding of LGS grows, there is so much more to learn. From research grants to conferences, from publications to voice of the patient family, this section provides avenues for furthering your knowledge and impact.
Get Involved
- Host a fundraiser. Volunteer at an event. Shop our LGS store. These are just some of the ways you can lend your personal support to our mission. Check out this section to get started.
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Home / Team / Fred Roedl, MBA

Fred Roedl, MBA

Vice Chair

Naples, FL and Bloomington, IN

Fred is the proud father of Brian. Brian enjoyed his 43 years living his most joyful and fulfilled life with the encouragement of Fred, Brian’s mom and his two brothers. Fred shares that “the life lessons acquired by being Brian’s father are innumerable and profound. First and foremost is the deep love for a son, who taught me how to value each person’s abilities, regardless of how they may be categorized by society’s norms. Brian’s ability, with so many “disabilities”, to touch and influence the many lives that crossed his path is another life lesson that remains his legacy”. Fred offers support to anyone who needs encouragement in navigating their own LGS journey.

Learn More About Our Board of Directors here.