About LGS
- Like many rare conditions, Lennox-Gastaut Syndrome can be a complete mystery when you first hear about it. Explore this section to get a thorough understanding of LGS—including its causes, symptoms, diagnosis and treatment.
New to LGS
- A diagnosis of LGS is deeply unsettling and can leave you at a loss as to where to turn for help and guidance. We’re here for you. In this section you will find information, resources, and communities of support for the challenging road ahead.
For Families
- If a loved one is living with LGS, the entire family shares in the difficult journey. How can you keep them safe? Find appropriate medical care? Get the support you need? This section gives answers to these and other critical questions.
About Research
- Even as our understanding of LGS grows, there is so much more to learn. From research grants to conferences, from publications to voice of the patient family, this section provides avenues for furthering your knowledge and impact.
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- Host a fundraiser. Volunteer at an event. Shop our LGS store. These are just some of the ways you can lend your personal support to our mission. Check out this section to get started.
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Home / Media

Media

Media Contact

Media members and anyone seeking more information about Lennox-Gastaut Syndrome or the LGS Foundation can direct inquiries to info@lgsfoundation.org.

LGS in the News

2024

May 1, 2024 - Source: The Balancing Act
Behind the Mystery Community Member, Dr. Tracy Dixon Salazar’s Journey with LGS Advocacy

April 22, 2024 - Source: TODAY
Her daughter had 300 seizures a month. So a mom earned a Ph.D. and found a treatment for her

2023

Aired February 20, 2023 - Source: The Balancing Act on Lifetime TV
The Lennox-Gastaut Syndrome Foundation: Working Together to Find a Cure

2021

Aired November 1, 2021 - Source: The Balancing Act on Lifetime TV
A Mom’s Journey to Understand Her Daughter’s Rare Disease

Press Release Archive

2024

December 2, 2024
Lennox-Gastaut Syndrome (LGS) to be a Major Focus at the 2024 American Epilepsy Society Meeting in Los Angeles

October 17, 2024
New Los Angeles Musical Highlights One Family’s Struggle to Live With Epilepsy and Lennox-Gastaut Syndrome

October 15, 2024
Lennox-Gastaut Syndrome (LGS) Foundation Announces International LGS Awareness Day on November 1st, Kicking Off Epilepsy Awareness Month

September 18, 2024
Beacon Launches HEADFIRST Clinical Trial to Study Sleep EEG in Pediatric Developmental Disorders, Partners with LGS Foundation

August 8, 2024
Lennox-Gastaut Syndrome (LGS) Foundation’s Advocates for LGS Program Brings Awareness to Rare Disease

July 8, 2024
Lennox-Gastaut Syndrome (LGS) Foundation 9th International Conference Focuses on Empowering Families and Transforming the Future

April 16, 2024
Lennox-Gastaut Syndrome (LGS) Foundation Announces Exciting New Research Funded in Time for the 9th Annual Walk ‘n’ Wheel for LGS Research

2023

October 26, 2023
International Lennox-Gastaut Syndrome (LGS) Awareness Day, November 1st, Will Kick Off Epilepsy Awareness Month

September 6, 2023
At the Lennox-Gastaut Syndrome Foundation’s Meeting of the Minds, Bringing Patient Families and Scientists Together is the Secret Sauce to Advancing Patient Prioritized Research

May 1, 2023
Lennox-Gastaut Syndrome (LGS) Foundation Hosts 8th Annual Walk ‘n’ Wheel for LGS Research

April 14, 2023
Lennox-Gastaut Syndrome (LGS) Foundation Launches Educational Kits for Caregivers to Learn about Treatments

February 16, 2023
For Rare Disease Day, Behind the Mystery of Lennox-Gastaut Syndrome is airing on Lifetime TV February 20th and 28th

2022

October 27, 2022
International Lennox-Gastaut Syndrome (LGS) Awareness Day, November 1st, to Kick Off Epilepsy Awareness Month

October 13, 2022
Lennox-Gastaut Syndrome Foundation Hosts Every Moment Matters Awareness Dinner to Help Families with Severe Epilepsy

June 13, 2022
Lennox-Gastaut Syndrome (LGS) Foundation Brings Together Patients, Families, Clinicians, Researchers, and Industry Partners to Discuss Treatment and Management of LGS

March 22, 2022
7th Annual Lennox-Gastaut Syndrome (LGS) Walk is Raising Critical Funds for Research on Purple Day, March 26th

February 28, 2022
LGS Foundation Debuts Novel Scientific Research Grant Program on Rare Disease Day

2021

September 8, 2021
First-ever LGS Research Meeting of the Minds is Scheduled for September 13-14 with a Family Research Day on September 18.

May 31, 2021
Sixth Annual LGS Walk Scheduled for June 5 Raising Critical Funds for Research

February 1, 2021
Seizure Action Plan Awareness Week Scheduled for February 8-14

2020

December 3, 2020
LGS Foundation Announces New Executive Director

November 1, 2020
New Coalition Launches to Promote Importance of Seizure Emergency Plans

October 29, 2020
LGS Awareness Day to Kick Off Epilepsy Awareness Month

Updated 10/17/24 (AM)