Leaders in LGS Award

Natalie Gilmore, LGS Foundation Past Board Chair 

As we reflect on the journey of the LGS Foundation, it's essential to recognize the remarkable leadership that has shaped our organization during pivotal moments. So, we want to take a moment to celebrate Natalie, who has distinguished herself as a true steward of our community, demonstrating unwavering commitment and resilience in her role.

Natalie has dedicated her time and skills to the LGS Foundation, playing a crucial role in organizing events for International Awareness Day over the years. She stepped into the position of Board President during a pivotal moment for our organization, guiding us through simultaneous leadership changes. This was no small feat, yet she embraced the challenge with grace and determination. For a year, Natalie expertly coordinated the Board of Directors while managing daily operations in the absence of an Executive Director. Her ability to maintain stability during such a transitional period was nothing short of extraordinary.

Natalie’s governance was characterized by a thoughtful consideration of change, growth, and the unique needs of our organization. Her strategic vision and commitment to collaboration have set the stage for a thriving future for the LGS Foundation and community. 

Tricia Proefrock, LGS Community Support Coordinator 

In the heart of our community, where compassion and dedication converge, we are fortunate to have leaders who truly embody the spirit of support and guidance. One such leader is Tricia, our exceptional Community Support Coordinator in the LGS Foundation Ambassador program. Her unwavering commitment to families and her innate ability to connect with others make her an invaluable asset to our team.

Tricia’s approach is rooted in empathy. She understands that every family’s journey is unique, and she takes the time to listen, ensuring that each member feels truly heard and valued. Her ability to connect with families is a testament to her nurturing spirit, making her a trusted ally for those embarking on this path. Whether it’s answering questions, offering guidance, or simply lending a compassionate ear, Tricia is always there, reminding families that they are not alone.

Jamie Riley, LGS Community Support Coordinator 

In the vibrant tapestry of our community, certain individuals stand out as beacons of inspiration and dedication. One such individual is Jamie, whose unwavering commitment and exceptional support have made a profound impact on our ambassador program and the community as a whole. Jamie's exceptional support and unwavering commitment have made her a true leader in our community.

Jamie is not just a participant; she is a catalyst for change. Time and again, she has taken the initiative to rally her team and the community around our shared mission. Whether it’s organizing events, providing guidance to new ambassadors, or simply lending a listening ear, Jamie is always there, ready to lend her support. Her ability to inspire those around her is a testament to her leadership qualities and her deep-rooted commitment to our cause.

Jamie's presence at our events has been nothing short of remarkable. She consistently goes above and beyond, volunteering her time and energy to ensure that everything runs smoothly. Her proactive approach and willingness to fill in wherever needed have not only enhanced the quality of our events but have also fostered a sense of camaraderie among our volunteers. Jamie embodies the spirit of teamwork, making everyone feel valued and appreciated.

Addyson Gruber, LGS Sibling 

In the heart of our community, there shines a bright light named Addyson. With unwavering determination and a compassionate spirit, she has become a pillar of hope for those impacted by LGS.

Each year, Addyson organizes an annual fundraiser that not only raises essential funds but also fosters a sense of unity and hope among families dealing with LGS. Her efforts go beyond mere fundraising; they create a platform for education, understanding, and support. Through her tireless work, Addyson is not only advocating for her sibling but also shining a light on the struggles faced by countless families in our community.

Her dedication extends to engaging and educating her school about LGS, further amplifying the impact of her advocacy work. Addyson's commitment to the cause demonstrates the power of young advocates in making a difference for rare diseases like LGS. By combining grassroots fundraising with educational outreach, Addyson exemplifies the spirit of advocacy that is crucial in advancing understanding and support for those affected by LGS.