Our New Identity: LGS
Emma's LGS Journey
Emma was a few weeks shy of her 17th birthday when she had her first seizure. It all started with 3 tonic-clonic seizures, and by the end of that week, she was having a myriad of seizure types. Emma suffers…
Latest News
International LGS Awareness Day & Epilepsy Awareness Month
Help Raise Awareness of LGS this November!
Join Us In raising awareness for the more than one million children and adults worldwide living with LGS! YOU are a part of something BIG, and your efforts have a BIG impact! Therefore, join us in raising awareness around International…
LGS Advocates are Raising Their Voices
Written By: Jennifer Griffin, Director of Family Support Just 6 months after we took the nation’s capital by storm for Rare Disease Week on Capitol Hill, the LGS Advocates were at it again in their local communities as part of…
Illuminate for LGS Awareness
Locations Around the World Light Up for LGS Awareness
The LGS Foundation continues to shine a light on Lennox-Gastaut Syndrome as we Illuminate for LGS. Promoting awareness and an understanding of what matters to LGS families. You Can Join Us to Illuminate! November 1 as part of the many…
Discovering Breakthroughs and Innovations in LGS Research
Over the past five years, LGS research has experienced significant advancements, providing hope for individuals and families affected by this complex disorder. At the LGS Foundation, we know that patient-driven research plays a vital role in driving research on topics…
Stamp Out VNS Myths!
Our community is stronger with facts! When it comes to Vagus Nerve Stimulator therapy (VNS Therapy) for seizure reduction, do you know fact from fiction?
We are Stronger with Facts: Let’s stamp out VNS Myths! LGS is tough; finding information doesn’t need to be. That’s why we are helping our community separate fact from fiction around Vagus Nerve Stimulation (VNS) Therapy. Often, information on specific…
Financial Resource Toolkit for LGS Families
The following list contains links to third-party websites. The LGS Foundation is not responsible for the content or privacy policies of these external sites. While we try to only list sites here that we feel contain useful information for our…
Trick or Treat for LGS
Order or Download your free About LGS Trick or Treat cards and spread awareness during Halloween.
Get Your About LGS Trick Or Treat Cards Today! (Available in English and Spanish) Share these cards with others while Trick-or-Treating to begin a conversation about LGS. Cards are business card sized (3.5 inches x 2 inches) and come in…
The LGS DISCOVER Study
A Clinical Study for Children and Adults with Lennox-Gastaut Syndrome
The LGS DISCOVER study, also identified as the YKP509C003 study, is a clinical trial for pediatrics and adults with Lennox-Gastaut Syndrome (LGS). The LGS DISCOVER study will evaluate whether an investigational medicine called carisbamate, when given along with other anti-seizure…
Meet Brock
It was a cold, snowy day, in Jan 2010. Brock was 3 years old when he fell backward, hit his head on the dresser, and began seizing. In the ER, the physicians believed he passed out due to his sugar…