The Daily Living section equips caregivers with practical, everyday support strategies. It outlines personal care tasks – such as bathing, toileting, and similar routine activities – and explains how to determine if home health services might best support your loved…
When great minds meet, great breakthroughs happen!
The 2025 LGS Research Meeting of the Minds, held July 21–22, brought together over 100 caregivers, healthcare professionals, researchers, and industry partners committed to improving care for individuals living with Lennox-Gastaut Syndrome (LGS) and associated developmental and epileptic encephalopathies (DEEs)….
Charlie was born on February 25, 2011, in Lansing, Michigan—the youngest of five grandsons. From the very beginning, he was full of life. He reached milestones quickly—talking, walking, and potty training earlier than his cousins. He was healthy, vibrant, and…
Join Us at the 10th International Family & Professional Conference July 9-11, 2026 Caribe Royale I 8101 World Center Drive, Orlando, FL Every two years, the LGS Foundation hosts a comprehensive, multi-day Family & Professional Conference, bringing together more than 350…
Advancing Evidence-Based LGS Care Across the Lifespan
2025 LGS Research Meeting of the Minds: Advancing Evidence-Based LGS Care Across the Lifespan Thank you for being an essential part of the 2025 LGS Research Meeting of the Minds. Your participation and dedication to advancing care for those living…
Help Raise Awareness this November!
Together for a Breakthrough, Today & Every Day As we close out this year’s awareness campaign, we’re reminded of what makes the LGS community extraordinary: your courage, your voices, your actions, and your unwavering hope. Because of you, more people…
The definition and rules governing Guardianship vs. Conservatorship can vary from state to state; therefore, please seek legal advice for details on your specific state laws and what type of guardianship or conservatorship your loved one will require. A guardianship…
12/21/2006 - 06/07/2020
Emma began having infantile spasms at just seven months old. We started ACTH injections right away, and she was on them for nearly three months. For a while, she did fairly well. But when she turned three, the seizures began…
Stepping Together for a Breakthrough!
April 2026: Together for a Breakthrough A Global Movement. Powered by Community. April is Walk Month for Lennox-Gastaut Syndrome. Across the globe, families, advocates, clinicians, and partners will step forward together—walking, wheeling, fundraising, and leading locally—to raise awareness, strengthen connection,…
Locations Around the World Light Up for LGS Awareness
The LGS Foundation continues to shine a light on Lennox-Gastaut Syndrome as we #IlluminateForLGS—raising awareness and promoting understanding of what truly matters to LGS families. Join Us & Illuminate for LGS Awareness! Starting on November 1 and continuing throughout the…
