New Treatment for Seizures in LGS
What is Clobazam Oral Film? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey….
New Treatment for Seizures
What is Cenobamate? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey. Cenobamate (the…
New Treatment for Seizures
What is perampanel? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey. Perampanel (the…
Savannah (age 30) & Tracy's Story
According to my records, I’ve witnessed more than 40,000 seizures—a remarkable number, even for a medical professional. Still, I’m not a medical doctor. I’m a mom. I remember the first seizure vividly. I awoke to the sound of choking coming…
Single mother to Amaree (age 11), diagnosed with LGS at age three.
Having big hopes and dreams for Amaree, Brittany grieved for the things that her daughter would not get to experience. Then one day Brittany decided to stop wasting time focusing on what Amaree could not do, and decided that she…
Support me as I attempt to hit 1,101 golf balls for LGS Awareness Day (Nov 1) to honor my son, John!
Donate now to honor John! Thank you so much for showing interest in my efforts to raise funds and awareness for Lennox-Gastaux Syndrome (LGS), a rare form of epilepsy that impacts my son, John. John had his first seizure…
Find a Doctor
Are you looking to find a doctor who knows about LGS? Check out our list below. Professionals listed on this site to help you find a doctor have treated patients with Lennox-Gastaut Syndrome and/or related disorders and have been recommended…
Upcoming Webinars: (Coming Soon) Previously Recorded Webinars: September 1, 2021 During this discussion, Dr. Tracy Dixon-Salazar dives into the mysteries of the LGS journey, current research on LGS, recent therapies, and the Foundation’s plan for the future of LGS Research…
Addyson (age 11)
Hi my name is Addyson Gruber. I am 11 years old and I live in Cincinnati Ohio with my brother Braxtin, my mom Katie and my dad Mark, and Braxtin’s service dog, Dawson. I am going into the 6th grade…
Get Your VIP Caregiver & Sibling Kits Today
First, we listened! It can be hard for brothers and sisters when a sibling has a chronic illness like LGS. This has disrupted their routines, and they worry and wonder what is happening and if their sibling will be alright….
