Volunteer

Champion our cause: Join the LGS volunteer movement! 

Use your skills and strengths to make a difference for families living with Lennox-Gastaut Syndrome.
Whether you can give an hour a month or lead a local event, there’s a place for you here.

Why Volunteer

• Make an impact: Help improve lives through awareness, education, research, and family support.
• Flexibility, based on you: Volunteer as your schedule allows-many roles are remote.
• Build community: Join a global network of families, advocates, and allies united for change.

Ways to Get Involved

• Community Support & Connection – Welcome and connect families through peer support, meetups, and support groups.
• Advocacy & Awareness – Raise awareness, secure proclamations, and advocate for better care through community and legislative action.
• Events & Fundraising – Help make events a success – from local walks and virtual campaigns to large in-person gatherings. Support with registration, logistics, or fundraising.
• Research & Advisory – Provide insight through surveys, focus groups, or advisory councils that shape better care.
• Creative & Communications – Use design, writing, photography, or video skills to help tell the LGS story and spread awareness.
• Skill-Based Projects – Lend your talents in grant writing, translation, data entry, or administrative tasks – anytime, anywhere.

Ready to Get Started?

Complete the Volunteer Interest Application below — Select all areas that interest you so we can match you to the best fit.

Updated 11/10/25 (KK)