LGS Foundation

LGS Grupo de Esperanza
2025-03-20 20:00 - 21:00 (America/New_York) | Virtual
Join us Thursday, March 20th at 8 pm ET
Nadie debería caminar solo en este sendero
El grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias.
Únase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS.
Juntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Caregiver of Adults with LGS – March Support Group Meeting
2025-03-24 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, March 24th at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Standing Together. Stronger Together. - April Support Group Meeting
2025-04-08 20:00 - 21:00 (America/New_York) | Virtual
Join us on Tuesday, April 8th at 8 pm ET.
Topic: Spring is finally here. A time of new beginnings!
This has been a difficult winter for the LGS community. A lot of grief, a lot of new families, and as always, a lot of seizures. During these times, it’s more important than ever to connect with others. Join us! If you need to talk, we’ll always listen.

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad - April Support Group Meeting
2025-04-15 20:00 - 21:00 (America/New_York) | Virtual
Join us Tuesday, April 15th at 8 pm ET
Hosted by dads, for dads.
Join our exclusive support group for male caregivers and Dads as we talk, share, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

LGS Grupo de Esperanza - Reunión del Grupo de Apoyo de abril
2025-04-24 20:00 - 21:00 (America/New_York) | Virtual
Únase a nosotros el jueves 24 de abril a las 8 pm ET
Nadie debería caminar solo en este sendero
El grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias.
Únase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS.
Juntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños!

Este grupo mensual está disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en línea de la Fundación LGS.
Para unirse a nuestra comunidad en línea y obtener información de inicio de sesión, visite nuestro grupo en www.facebook.com/groups/lgsfoundation

10th Annual Walk ‘n’ Wheel for LGS Research
2025-04-26
Save the Date & Join us for Our
10th Annual Walk ‘n’ Wheel for LGS Research!
Saturday, April 26, 2025
This year, we are making LGS research history by uniting leading experts to create formal recommendations that will establish a standard of care for Lennox-Gastaut Syndrome (LGS). This consensus opinion will optimize treatment, provide a clear roadmap for patients, and serve as a vital stepping stone in LGS research.
This year’s 10th Annual Walk ‘n’ Wheel for LGS Research is more crucial than ever. Together, we are making huge strides toward a breakthrough and shaping the future of LGS treatments!

10:00am – 2:00pm ET

10:30am – 2:00pm ET

Help Support LGS Research – Get Involved Now!
Lo

Orlando, FL - LGS Walk & Wheel Color Run
2025-04-26 09:00 - 11:00 (America/New_York) | Waterleigh Phase 2 Amenity Field, 10697 Atwater Bay Drive, Winter Garden, FL, 34787, United States
🎨 LGS Walk & Wheel Color Run – Supporting Jacob’s Journey 🎨Join us for a morning of color, fun, and community spirit as we run (or walk or wheel!) to support the LGS Foundation and Jacob’s Journey.
🗓 Date: April 26⏰ Time: 9 AM – 11 AM💵 Entry Fee: $5 (All proceeds go to the LGS Foundation)
Get ready to get colorful for a great cause! Bring your friends, wear white, and let’s make a difference together!
Donate to Support Our Fundraising Efforts

SF Bay, CA Local Walk 'n' Wheel for LGS Research
2025-04-26 11:00 - 13:00 (America/Los_Angeles) | Buri Buri Park, 200 Arroyo Dr, South San Francisco, CA, 94080, United States
Calling All SF Bay Area Families!
Join us on April 26, 2025, at Buri Buri Park in South San Francisco, CA, as we Step Together for a Breakthrough.
Come join us for the SF Bay Area Local Walk ‘n’ Wheel for LGS Research—a fun and meaningful event where families, friends, and community members come together in support of those living with Lennox-Gastaut Syndrome (LGS). Whether you walk, roll, or cheer from the sidelines, we’ll unite side by side to show our strength, love, and commitment to making a difference.
This event is all about building connections, sharing experiences, and supporting one another. It’s a chance to meet others who understand the journey of living with LGS, find encouragement, and be inspired by the power of community.
Let’s walk together, celebrate our shared hope, and raise awareness for research that can make a real impact in the lives of those affected by LGS. We hope you’ll join us for this uplifting, community-driven event and help us step closer to a breakthrough!
This event is free to all LGS community members, donations are appreciated. We can’t wait to see you there!

Donate to Support Our Fundraising Efforts

Eubank, KY Local Walk 'n' Wheel for LGS Research
2025-04-26 11:00 - 13:30 (America/New_York) | Eubank Community Park, Bulldog Street, Eubank, KY, 42567, United States
Join us on April 26, 2025, at Eubank Community Park as We Step Together for a Breakthrough.
We’re excited to invite you to Tyler’s Walk on Wheels, a special event supporting the Lennox-Gastaut Syndrome (LGS) Foundation. This cause means so much to us because it’s personal – our son Tyler has LGS, and while he’s doing well with amazing doctors and care, we’re determined to help fund the research that could lead to better treatments and, ultimately, a cure.
All proceeds from the event will go directly to LGS research. We’ll have raffles, door prizes, t-shirts, and music to make it a fun, meaningful day. Most importantly, we’ll be walking together, showing support for Tyler and all families affected by LGS.
Your presence would mean the world to us as we continue the fight for a cure. Thank you for being part of this journey with us.
This event is free to all LGS community members, donations are appreciated. We can’t wait to see you there!
Donate to Support Our Fundraising Efforts
Register to Attend Tyler’s Walk

Colorado Springs, CO Local Walk 'n' Wheel for LGS Research
2025-04-26 11:00 - 15:00 (America/Phoenix) | Bear Creek Regional Park, 2002 Creek Crossing Street, Colorado Springs, CO, 80905, United States
Calling All Colorado Families!
Join us on April 26, 2025, at Bear Creek Regional Park as we Step Together for a Breakthrough.
This special event is an opportunity for families and friends to come together in support of those living with Lennox-Gastaut Syndrome (LGS). Whether you walk or roll, we’ll unite side by side to show our strength and solidarity.
It’s a time to connect with others who are navigating the same journey, to find support and inspiration, and to build a stronger community. We’ll take a walk around the park, then enjoy delicious food, uplifting music, and great company.
Let’s create new friendships, share our stories, and leave with smiles on our faces and hearts full of hope. Together, we make a difference.
This event is free to all LGS community members. We can’t wait to see you there!
Donate to support our fundraising efforts
Register to Attend

Caregiver of Adults with LGS - April Support Group Meeting
2025-04-28 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, April 28th at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Standing Together. Stronger Together. - May Support Group Meeting
2025-05-13 20:00 - 21:00 (America/New_York) | Virtual
Join us on Tuesday, May 13th at 8 pm ET.
Topic: Your Favorite Things!
What’s that thing that you need to get through the day? Is it your morning coffee? The 10-minute afternoon nap? The fully-charged iPad that will keep your loved one occupied so you can drink that coffee, or quietly close your eyes?
It’s always the little things in life that can be the BIGGEST things in life. We always hear “I don’t know how you do it”.
Join us and let us know, how do you do it?!

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

LGS Grupo de Esperanza - Reunión del Grupo de Apoyo de Mayo
2025-05-15 20:00 - 21:00 (America/New_York) | Virtual
Únase a nosotros el jueves 15 de mayo a las 8 pm ET
Nadie debería caminar solo en este sendero
El grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias.
Únase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS.
Juntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños!

Este grupo mensual está disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en línea de la Fundación LGS.
Para unirse a nuestra comunidad en línea y obtener información de inicio de sesión, visite nuestro grupo en www.facebook.com/groups/lgsfoundation

Caregiver of Adults with LGS - May Support Group Meeting
2025-05-19 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, May 19th at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad - May Support Group Meeting
2025-05-20 20:00 - 21:00 (America/New_York) | Virtual
Join us Tuesday, May 20th at 8 pm ET
Hosted by dads, for dads.
Join our exclusive support group for male caregivers and Dads as we talk, share, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Standing Together. Stronger Together. - June Support Group Meeting
2025-06-10 20:00 - 21:00 (America/New_York) | Virtual
Join us on Tuesday, June 10th at 8 pm ET.
Topic: Managing the Business of LGS!
LGS is tough. Navigating all of the ‘systems’ shouldn’t have to be. But it is!!. It can often feel like you’re running a small business. Appointments, insurance denials, specialists, therapists, day programs, IEPs!! And who manages it all? YOU! Join all of the other ‘small business owners’ also known as ‘LGS Caregivers’, and let’s talk about it. Share your strategies, tips, and self-care ideas for when it gets to be too much!

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad - June Support Group Meeting
2025-06-17 20:00 - 21:00 (America/New_York) | Virtual
Join us Tuesday, June 17th at 8 pm ET
Hosted by dads, for dads.
Join our exclusive support group for male caregivers and Dads as we talk, share, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Grupo de Esperanza LGS - Reunión del Grupo de Apoyo de junio
2025-06-19 20:00 - 21:00 (America/New_York) | Virtual
Únase a nosotros el jueves 19 de junio a las 8 pm ET
Nadie debería caminar solo en este sendero
El grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias.
Únase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS.
Juntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños!

Este grupo mensual está disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en línea de la Fundación LGS.
Para unirse a nuestra comunidad en línea y obtener información de inicio de sesión, visite nuestro grupo en www.facebook.com/groups/lgsfoundation

Caregiver of Adults with LGS – June Support Group Meeting
2025-06-23 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, June 23rd at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Standing Together. Stronger Together. - July Support Group Meeting
2025-07-08 20:00 - 21:00 (America/New_York) | Virtual
Join us on Tuesday, July 8th at 8 pm ET.
Topic: Summer’s Here! Is That A Good Thing?
How will your family be spending the summer? Extended School Year (ESY)? Summer Camp? Are you able to create a fun, safe, and relaxing summer for your LGS loved one and their siblings, or does this big break in the routine add chaos to your lives? Join a group of like-minded caregivers as we unwind, unload, listen, and support one another.

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Your Story. Your Session.
2025-07-15 - 2025-08-14 | Virtual
Your Story. Your Session. is a free, live, virtual experience created just for caregivers of those living with Lennox-Gastaut Syndrome (LGS). Whether you’re newly navigating a diagnosis or have years of experience, this is a space for you to learn, connect, and feel supported.
💜 Live Sessions – Choose the Time That Fits Your Life:

Tuesday, July 15 @ 6:00 PM ET
Thursday, August 1 @ 1:00 PM ET
Wednesday, August 14 @ 4:00 PM ET

🧠 What to Expect:

Expert insights from pediatric neurologists and epilepsy specialists
Real caregiver stories and strategies
Practical tools for navigating daily challenges and transitions in care
Opportunities to ask questions or simply listen in

🎤 You decide how to participate—share your experience, ask a question, or just take it all in. All voices are welcome.
📍 Where: Online via Zoom
⏰ Duration: 1 Hour💲 Cost: FREE
Reserve Your Spot Today

Dad to Dad – July Support Group Meeting
2025-07-15 20:00 - 21:00 (America/New_York) | Virtual
Join us Tuesday, July 15th at 8 pm ET
Hosted by dads, for dads.
Join our exclusive support group for male caregivers and Dads as we talk, share, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Grupo de Esperanza LGS - Reunión del Grupo de Apoyo de julio
2025-07-17 20:00 - 21:00 (America/New_York) | Virtual
Únase a nosotros el jueves 17 de julio a las 8 pm ET
Nadie debería caminar solo en este sendero
El grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias.
Únase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS.
Juntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños!

Este grupo mensual está disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en línea de la Fundación LGS.
Para unirse a nuestra comunidad en línea y obtener información de inicio de sesión, visite nuestro grupo en www.facebook.com/groups/lgsfoundation

2025 LGS Research Meeting of the Minds
2025-07-21 - 2025-07-22 | The Logan Hotel, Philadelphia, PA, 19103, United States
Save the Date | July 21 – 22, 2025
Advancing Evidence-Based LGS Care Across the Lifespan
This bi-annual Meeting of the Minds research conference brings together hundreds of researchers, healthcare providers, clinical trialists, scientists, advocates, caregivers, and industry partners to push the conversation about research beyond only treating the symptom of seizures, but also finding treatments that target the whole syndrome.
Learnings from the Meeting of the Minds help guide the LGS Foundation’s research strategy and efforts.
Learn More

Caregiver of Adults with LGS – July Support Group Meeting
2025-07-28 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, July 28th at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Standing Together. Stronger Together. – August Support Group Meeting
2025-08-12 20:00 - 21:00 (America/New_York) | Virtual
Join us on Tuesday, August 12th at 8 pm ET.
Topic: What’s The Title of Your LGS Story?
If you could write a book about your family’s LGS journey, what would it be called? Come join our group this month and share that title and a little bit of your story. Maybe your story is just beginning, or maybe you’ve been doing this for a long time. We want to hear it all!

This monthly support group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Dad to Dad – August Support Group Meeting
2025-08-19 20:00 - 21:00 (America/New_York) | Virtual
Join us Tuesday, August 19th at 8 pm ET
Hosted by dads, for dads.
Join our exclusive support group for male caregivers and Dads as we talk, share, and offer encouragement to each other along this LGS journey. Bring your favorite beverage and carve out some time for just you!

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Grupo de Esperanza LGS - Reunión del Grupo de Apoyo de Agosto
2025-08-21 20:00 - 21:00 (America/New_York) | Virtual
Únase a nosotros el jueves 21 de agosto a las 8 pm ET
Nadie debería caminar solo en este sendero
El grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias.
Únase a las cuidadoras Bertha Guillén y Michele Torres cada mes mientras nos escuchamos, acompañamos y apoyamos mutuamente como madres y padres de niños con LGS.
Juntos somos más fuertes. Nadie debería caminar solo en este sendero. Todos son bienvenidos, ya sea que sea nuevo a LGS o tenga muchos años de experiencia. ¡Hay esperanza para nuestros niños!

Este grupo mensual está disponible para familias LGS que son miembros de la Comunidad de apoyo a cuidadores en línea de la Fundación LGS.
Para unirse a nuestra comunidad en línea y obtener información de inicio de sesión, visite nuestro grupo en www.facebook.com/groups/lgsfoundation

Caregiver of Adults with LGS – August Support Group Meeting
2025-08-25 20:00 - 21:00 (America/New_York) | Virtual
Join us Monday, August 25th at 8 pm ET
Living with LGS is a marathon, not a sprint.
Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs of the individual with LGS change in adulthood, but, so, too, do the needs of aging caregivers. We invite parents and caregivers of adults with LGS to join us for discussion and support as together we face the ever-changing challenges associated with LGS. (Parents of adolescents are also welcome to join the support group.)
Adult caregivers, Geraldine and Elizabeth host a monthly support group meetup to discuss the challenges associated with caring for an adult with Lennox-Gastaut Syndrome.

This monthly group is available to LGS families who are members of the LGS Foundation Online Caregiver Support Community.
To join our online community and for login information, please visit our group at www.facebook.com/groups/lgsfoundation

Setting Up for a Successful Future in Lennox-Gastaut Syndrome: Preparing for Adult Care
2025-08-28 18:30 - 19:30 (America/New_York) | Virtual
Setting Up for a Successful Future in Lennox-Gastaut Syndrome: Preparing for Adult Care
Date & Time:📅 Thursday, August 28, 2025⏰ 6:30 PM ET
Description:Join us for a free, educational webcast designed for caregivers and patients on transitioning individuals with Lennox-Gastaut Syndrome (LGS) to adult care.
Our expert faculty – including a health care professional and an experienced LGS caregiver – will share best practices for collaborating with adult care teams to support long-term management of LGS.
This session is:

🎓 Non-accredited
💜 Caregiver-focused
💻 Virtual and free to attend

Registration:👉 Click here to register
Partners:This program is provided in partnership with CME Outfitters and supported by an independent medical education grant from Jazz Pharmaceuticals.
