Join us Thursday, March 20th at 8 pm ET Nadie debería caminar solo en este sendero El grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias. Únase a las cuidadoras Bertha Guillén y...

Join us Monday, March 24th at 8 pm ET Living with LGS is a marathon, not a sprint. Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need...

Save the Date | July 21 – 23, 2025 Advancing Evidence-Based LGS Care Across the Lifespan This bi-annual Meeting of the Minds research conference brings together hundreds of researchers, healthcare providers, clinical trialists, scientists, advocates, caregivers, and industry partners to push...