Caregiver of Adults with LGS Support Group
VirtualLiving with LGS is a marathon, not a sprint. Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs...
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Halloween Masquerade Ball
Disneyland Hotel 1150 W Magic Way, Anaheim, CA, United StatesHalloween Masquerade Ball at Epilepsy Awareness Day at Disneyland Monday, October 31, 2022 | 6:00pm PT Disneyland Hotel Conference Center - Anaheim, CA Join us for the FIRST-EVER Halloween Masquerade Ball at Epilepsy Awareness Day at Disneyland, co-hosted by Sofie's...
Free
LGS & DEE Caregiver Meetup Hosted by the LGS Foundation
Disneyland Hotel 1150 W Magic Way, Anaheim, CA, United StatesEpilepsy Awareness Day at Disneyland Sleeping Beauty Pavilion Tuesday, November 1, 2022 | 11:00am - 12:00pm PT The LGS Foundation welcomes ALL caregivers from the Developmental Epileptic Encephalopathies (DEEs) Community as we gather to build our caregiver support network, share...
Free
“one, one thousand…” Photo Exhibition Reception with Discussion
University of Colorado 13080 E. 19th Ave., Aurora, CO, United StatesJoin us in person or online to view "one, one thousand..." and hear talks by the artist/photographer and her sister Lori, mother of David, who is diagnosed with Lennox-Gastaut Syndrome. “one, one thousand…” is an unconventional documentary and a different...
Free
Cooking for a Cure for LGS
Borden Bargains 555 E Water St, Borden, IndianaThis year for LGS awareness, I am hosting "Cooking for a Cure for LGS"! I have rented the pop-up shop at Borden Bargains. We'll have chili, vegetable soup, and chicken and dumplings, as well as a bake sale and snack...
Free
Every Moment Matters Awareness Dinner Event
Birch Aquarium 2300 Expedition Way, 92037, La Jolla, CA, United StatesEvery Moment Matters Awareness Dinner Event Saturday, November 5, 2022 | 6:00pm PT Birch Aquarium - San Diego, CA Join us for an evening of making every moment matter. Celebrate with us as we raise funds to help families impacted...
$250
LGS: Standing Together. Stronger Together. – Monthly Support Group
The LGS Support Community- We Are Stronger Together The LGS community is growing rapidly, and we couldn't be happier that, finally, our families are finding us. Not all that long ago, this wasn't the case for LGS caregivers. We longed...
Dad to Dad Support Group
Dad’s and our Male caregivers are the centers of the LGS Family. Join our exclusive support group for male caregivers and Dads as we talk, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and...
Caregiver of Adults with LGS Support Group
Living with LGS is a marathon, not a sprint. Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs...
LGS Research Roundtable @ AES
One21 @ Johnny Cash's Bar & BBQ 121 3rd Ave S., Nashville, TN, United StatesAdvancing Clinical Research In LGS, Starting The Conversation Friday, December 2, 2022 | 11:00am CT One21 at Johnny Cash's Bar & BBQ - Nashville, TN Every year, the LGS Foundation organizes the LGS Research Roundtable at the American Epilepsy Society's...
Free
The Santa Express BELIEVE Expedition
Hillview Police Department 283 Crestwood Rd, Louisville, KY, United StatesJoin us for a full night of family fun! Grab your kids and bring them along on an expedition to find the spirit of Christmas. The little ones already believe in the magic of Christmas, but this expedition is so...
$25
LGS: Standing Together. Stronger Together. – Monthly Support Group
The Holidays! Making Merry in an LGS World- Is that even possible? Now that Thanksgiving has passed, we jump into our holiday planning for Hanukkah, Christmas, & Kwanzaa but LGS is always looming, threatening to wreak havoc on the festivities. Please join...