Join us for a full night of family fun! Grab your kids and bring them along on an expedition to find the spirit of Christmas. The little ones already believe in the magic of Christmas, but this expedition is so...
The Holidays! Making Merry in an LGS World- Is that even possible? Now that Thanksgiving has passed, we jump into our holiday planning for Hanukkah, Christmas, & Kwanzaa but LGS is always looming, threatening to wreak havoc on the festivities. Please join...
The Power of Community The holidays are over and January gloom is settling in. Many of us are stuck at home without adequate support or contact with others. It's a lonely time of year made more challenging by the complexities...
Dad’s and our Male caregivers are the centers of the LGS Family. Join our exclusive support group for male caregivers and Dads as we talk, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and...
Living with LGS is a marathon, not a sprint. Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs...
Join us for a panel discussion about enhancing interactions with the healthcare system and society through art. View the exhibit, "one, one thousand... Photographs by Debe Arlook" on display in the Fulginiti Pavilion lobby. PANEL DISCUSSION: Debe Arlook Photographer, Artist & Lori’s...
Join the LGS Foundation and DJ's Kara & Tayla for an LGS Virtual Valentine's Dance Party! Meet up with friends virtually for dancing and socializing! You might even make some new friends! Have some snacks and drinks ready. Dress Up...
Topic: Using Your Voice for your loved one with LGS How do you feel about advocacy? Are you stuck trying to communicate with the school, the doctor, and your community? Join our monthly support group as we share stories of...
Dad’s and our Male caregivers are the centers of the LGS Family. Join our exclusive support group for male caregivers and Dads as we talk, share and offer encouragement to each other along this LGS journey. Bring your favorite beverage and...
Living with LGS is a marathon, not a sprint. Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need for support is great. Not only do the needs...
“Rare Disease doesn’t come with a manual, it comes with a mother who never gives up!” Tune In – February 20 & 28, 2023 For A Special Segment Of Behind The Mystery Featuring LGS Foundation Executive Director, Tracy Dixon-Salazar, PhD ...
Topic: Care Provider Shortages Is your loved one eligible for in-home nursing? Do you receive respite or other services that could either lighten your load a bit or improve your loved one's quality of life? Once you become eligible for...
