Join us on Tuesday, June 10th at 8 pm ET. Topic: Managing the Business of LGS! LGS is tough. Navigating all of the 'systems' shouldn't have to be. But it is!!. It can often feel like you're running a small...

Join us Tuesday, June 17th at 8 pm ET Hosted by dads, for dads. Join our exclusive support group for male caregivers and Dads as we talk, share, and offer encouragement to each other along this LGS journey. Bring your...

Únase a nosotros el jueves 19 de junio a las 8 pm ET Nadie debería caminar solo en este sendero El grupo de esperanza de LGS es un espacio seguro para reunirnos virtualmente y compartir nuestras historias. Únase a las...

Join us Monday, June 23rd at 8 pm ET Living with LGS is a marathon, not a sprint. Caring for an adult with LGS can be every bit as demanding as caring for a child with LGS, and the need...

Save the Date | July 21 – 23, 2025 Advancing Evidence-Based LGS Care Across the Lifespan This bi-annual Meeting of the Minds research conference brings together hundreds of researchers, healthcare providers, clinical trialists, scientists, advocates, caregivers, and industry partners to push...