About LGS
- Like many rare conditions, Lennox-Gastaut Syndrome can be a complete mystery when you first hear about it. Explore this section to get a thorough understanding of LGS—including its causes, symptoms, diagnosis and treatment.
New to LGS
- A diagnosis of LGS is deeply unsettling and can leave you at a loss as to where to turn for help and guidance. We’re here for you. In this section you will find information, resources, and communities of support for the challenging road ahead.
For Families
- If a loved one is living with LGS, the entire family shares in the difficult journey. How can you keep them safe? Find appropriate medical care? Get the support you need? This section gives answers to these and other critical questions.
About Research
- Even as our understanding of LGS grows, there is so much more to learn. From research grants to conferences, from publications to voice of the patient family, this section provides avenues for furthering your knowledge and impact.
Get Involved
- Host a fundraiser. Volunteer at an event. Shop our LGS store. These are just some of the ways you can lend your personal support to our mission. Check out this section to get started.
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Orlando, FL – LGS Walk & Wheel Color Run

Name: Orlando, FL – LGS Walk & Wheel Color Run
Start: 2025-04-26T09:00:00-04:00
End: 2025-04-26T11:00:00-04:00
Location: Waterleigh Phase 2 Amenity Field

April 26 @ 9:00 am - 11:00 am EDT

🎨 LGS Walk & Wheel Color Run – Supporting Jacob’s Journey 🎨
Join us for a morning of color, fun, and community spirit as we run (or walk or wheel!) to support the LGS Foundation and Jacob’s Journey.

🗓 Date: April 26
⏰ Time: 9 AM – 11 AM
💵 Entry Fee: $5 (All proceeds go to the LGS Foundation)

Get ready to get colorful for a great cause! Bring your friends, wear white, and let’s make a difference together!

Donate to Support Our Fundraising Efforts

Details

Date:: April 26
Time:: 9:00 am - 11:00 am EDT

Organizer

: Tim Baker
Email: tim.baker22@yahoo.com

Venue

: Waterleigh Phase 2 Amenity Field
: 10697 Atwater Bay Drive
Winter Garden, FL 34787 United States + Google Map