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Responsive Neurostimulation (RNS)

New Treatment for Seizures

What is Responsive Neurostimulation (RNS)? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey….

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Corpus Callosotomy

What Is a Corpus Callosotomy? The corpus callosum is a band of nerve fibers located deep in the brain that connects the two halves (hemispheres) of the brain. It helps the hemispheres share information, but it also contributes to the…

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Comprehensive Care Centers

Individuals with Lennox-Gastaut Syndrome have complex and lifelong neurological and medical needs that are unique. Often, a local care team is not familiar with LGS or may not have had another patient with this diagnosis. A visit to a Comprehensive…

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Seizures & Safety

Safety Is a constant Concern for those with lGS Children and adults with LGS have frequent seizures and are at high risk of injury. Further, they may not have the ability to sense danger, may wander off from their home…

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Seizure Clusters, Status Epilepticus, and Rescue Medication

Seizure clusters and status epilepticus are common in LGS and are a seizure emergency. A Seizure Action Plan should be created for every individual with LGS and shared with other caregivers. Seizure Action Plans outline what to do during a…

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Create a Seizure Action Plan (SAP)

A Seizure Action Plan should be created for every individual with LGS and shared with other caregivers. What is a Seizure Action Plan (SAP)? A seizure is a medical emergency. A Seizure Action Plan (SAP) contains tailored guidelines on how…

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Keeping a Seizure Diary

Keep a seizure diary where you record seizures along with other relevant information, such as dietary changes, the timing of medication intake of both anticonvulsants and other drugs, amount and quality of sleep, etc. This is a useful tool when…

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Sudden Unexpected Death in Epilepsy (SUDEP)

Mortality due to epilepsy is a significant concern for the families of those with LGS. Seizures can sometimes be fatal for a number of reasons. Some children with LGS may lose their lives due to accidents, status epilepticus, or illness….

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Additional Resources

The following list contains links to third-party websites. The LGS Foundation is not responsible for the content or privacy policies of these external sites. While we try to only list sites here that we feel contain useful information for our…

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