The LGS Foundation is dedicated to providing a comprehensive LGS Learning and Resource Center (LLRC) so those living with LGS can #NeverStopLearning
Whether it is to find a doctor, learn about epilepsy surgery, understand seizure clusters, or something else, the LLRC is here for you.
We are working hard to add topics to the LLRC. Is something missing? Please let us know at info@lgsfoundation.org
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The PACIFIC Study is a clinical trial for a drug called LP352. This study will assess the safety and tolerability of this drug as well as examine changes in seizure frequency over the 90-day treatment period. The study plans to…
What is Carisbamate? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey. Carisbamate (the…
Being a caregiver for a loved one with LGS is a commitment unlike any other. Caregiving requires limitless amounts of energy, empathy, and patience. While most caregivers will tell you that taking care of a loved one is a genuinely…
A Clinical Trial Open to Those With Seizures Associated with LGS
The Skyway Study is a Phase 3 clinical research study of an investigational medication for children, teens, and adults diagnosed with Lennox-Gastaut Syndrome (LGS) who are currently using 0-3 anti-seizure medications to manage symptoms and are still experiencing seizures. The…
A Clinical Trial Open to Those With Seizures
The STARS (Stand Together Against pRolonged Seizures) Research Study is a clinical trial for a drug called Alprazolam, which is sometimes used to treat seizures. Alprazolam is the active ingredient in Xanax, a commonly known drug. This study is a…
New Treatment for Seizures in CDKL5 Deficiency Disorder (a genetic cause of seizures that can lead to LGS)
What is Ganaxolone? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey. Ganaxolone (the…
New Treatment for Seizure Clusters
What Is Midazolam Nasal Spray? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey….
What is Cannabidiol? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey. Cannabidiol (the…
New Treatment for Seizure Clusters
What is Diazepam Nasal (Valtoco) Spray? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other treatments for LGS. We hope you find this information useful as you navigate your LGS journey. Diazepam…
What is Felbamate? Felbamate (the generic name), also known as Felbatol (the brand name), is an anti-epileptic drug that was approved by the Food and Drug Administration (FDA) for the management of focal seizures (previously called partial seizures) and seizures…
