Support me as I attempt to hit 1,101 golf balls for LGS Awareness Day (Nov 1) to honor my son, John!
Donate now to honor John! Thank you so much for showing interest in my efforts to raise funds and awareness for Lennox-Gastaux Syndrome (LGS), a rare form of epilepsy that impacts my son, John. John had his first seizure…
Find a Doctor
Are you looking to find a doctor who knows about LGS? Check out our list below. Professionals listed on this site to help you find a doctor have treated patients with Lennox-Gastaut Syndrome and/or related disorders and have been recommended…
Upcoming Webinars: (Coming Soon) Previously Recorded Webinars: September 1, 2021 During this discussion, Dr. Tracy Dixon-Salazar dives into the mysteries of the LGS journey, current research on LGS, recent therapies, and the Foundation’s plan for the future of LGS Research…
Addyson (age 11)
Hi my name is Addyson Gruber. I am 11 years old and I live in Cincinnati Ohio with my brother Braxtin, my mom Katie and my dad Mark, and Braxtin’s service dog, Dawson. I am going into the 6th grade…
Epilepsy surgery is any type of brain surgery where parts of the brain are removed, disconnected, destroyed, or stimulated to stop seizures. There are many different types of epilepsy surgeries. Which procedure is used depends upon the type of seizures…
How does the brain control heart rate, digestion, sweating, speech, chewing, and the gag reflex? Though these functions seem unrelated, they’re all controlled by the vagus nerve – a long fiber that connects the brain to the throat, heart, and…
New Treatment for Seizures
What Is Deep Brain Stimulation (DBS)? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS…
New Treatment for Seizures
What is Responsive Neurostimulation (RNS)? LGS is tough. Finding information shouldn’t be. That is why we provide information about this and other medications often used in LGS. We hope you find this information useful as you navigate your LGS journey….
What Is a Corpus Callosotomy? The corpus callosum is a band of nerve fibers located deep in the brain that connects the two halves (hemispheres) of the brain. It helps the hemispheres share information, but it also contributes to the…
Individuals with Lennox-Gastaut Syndrome (LGS) have complex, lifelong neurological and medical needs that require specialized care. Many local healthcare providers may be unfamiliar with LGS or have limited experience managing its unique challenges. Visiting a Comprehensive Care Center provides patients…
