Elevate Patient Assistance Program
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The LGS Foundation’s Elevate Patient Assistance Program provides financial assistance to individuals with LGS to help pay for durable medical equipment not typically covered through insurance or other programs.
The Elevate Patient Assistance Program is open to residents in the United States. The grant cycle opens in February and remains open until all funds are depleted.
Families may submit an application for assistance once every five years. The maximum allowance per family, per application, is $1,500.
Items currently covered under this program include:
- Durable medical equipment (such as helmets, wheelchairs, orthotics, cooling vests, etc.)
- Sensory Items (such as weighted blankets)
- Therapy Equipment (such as adaptive bikes)
- Communication Equipment (such as iPads)
- Seizure Alert Devices (provided in partnership with Danny Did Foundation)
- Guardianship expenses
The program does not cover medical co-pays, housing/food assistance, therapy costs, service animals, or respite assistance.
If a request is made for an eligible item with a cost greater than $1,500 the LGS Foundation will apply the awarded amount as the final payment towards that item.
If you are applying for an iPad to use as an assistive communication device, please note the assistance program only covers either an iPad or an iPad mini (256GB, WI-FI only). If you were granted funding for an iPad previously, there is a 8-year minimum before you may reapply for a new one. The LGS Foundation does not provide AppleCare insurance, but you may choose to add it later at your own cost. We do suggest a durable cover be used to protect the device. This can be included with your application for an iPad.
If the equipment you are interested in is not listed above, please contact with more details regarding the requested item(s) for eligibility review.
Our assistance application period begins each year in February, and we cannot accept applications prior to the beginning of each grant cycle. When funds are depleted for the year, the program will be closed until the next application cycle. Notification will be placed on our website. Complete applications will be reviewed and approved on a first-come, first-served basis. All documentation must be received for the review process to begin.
The application must include the following documentation:
- Completed application
- Utility Bill in the applicant or main caregiver name
- A recent letter from the physician or health care professional who is treating the person with LGS explaining the medical necessity of the request
- A letter of denial from the insurance provider stating that the requested equipment was denied (when applicable for all durable medical equipment)
- Any additional documentation pertaining to the nature of the request
All submitted information is kept confidential.
For questions about this program, please email
By awarding this financial assistance, the LGS Foundation is making no recommendation as to the appropriateness or safety of a particular piece of equipment for persons with Lennox-Gastaut Syndrome, associated epilepsies, and other conditions. The LGS Foundation and its Board of Directors are not responsible for the safety and proper use of awarded equipment. Applicants are strongly encouraged to consult with medical professionals regarding the equipment requested. Application information will not be divulged without written consent from the applicant, parent, or legal guardian. We do ask that award recipients submit a photo showing the person with LGS using the equipment that may be used for awareness purposes for this grant program. Grant recipients will be identified by their first name only with the written permission of the parent or legal guardian.
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Updated 08/22/24 (AM)