Elevate Patient Assistance Program

The Elevate Patient Assistance Program has NOW CLOSED for 2024 and will re-open in early 2025.

The LGS Foundation’s Elevate Patient Assistance Program provides financial assistance to individuals with LGS to help pay for durable medical equipment not typically covered through insurance or other programs.

The Elevate Patient Assistance Program is open to residents in the United States. The grant cycle opens in February and stays open until we deplete all funds.

Families may submit an application for assistance once every five years. The maximum allowance per family, per application, is $1,500.

Items currently covered under this program include:

  • Durable medical equipment (such as helmets, wheelchairs, orthotics, cooling vests, etc.)
  • Sensory Items (such as weighted blankets)
  • Therapy Equipment (such as adaptive bikes)
  • Communication Equipment (such as iPads)
  • Seizure Alert Devices (provided in partnership with Danny Did Foundation)
  • Guardianship expenses

The program does not cover medical co-pays, housing/food assistance, therapy costs, service animals, or respite assistance.

If someone requests an eligible item that costs more than $1,500, the LGS Foundation will apply the awarded amount as the final payment toward that item.

​If you are applying for an iPad to use as an assistive communication device, please note the assistance program only covers either an iPad or an iPad mini (256GB, WI-FI only). If you received funding for an iPad previously, you must wait a minimum of 8 years before you can reapply for a new one. The LGS Foundation does not provide AppleCare insurance, but you may choose to add it later at your own cost. We suggest using a durable cover to protect the device. You can include this with your application for an iPad.

If you are interested in equipment that is not listed above, please contact info@lgsfoundation.org with more details regarding the requested item(s) for eligibility review.

Our assistance application period begins each year in February, and we cannot accept applications prior to the beginning of each grant cycle. When we deplete the funds for the year, we will close the program until the next application cycle. We will post a notification on our website. We will review and approve complete applications on a first-come, first-served basis. All documentation must be received for the review process to begin. 

The application must include the following documentation:

  • Completed application
  • Utility Bill in the applicant or main caregiver name
  • A recent letter from the physician or health care professional who is treating the person with LGS explaining the medical necessity of the request
  • A letter of denial from the insurance provider stating that the requested equipment was denied (when applicable for all durable medical equipment)
  • Any additional documentation pertaining to the nature of the request

Incompletely filled applications or those missing information will not enter the queue for review until they are complete. All applicants will receive an email stating approval or denial of their application. Denied applicants wishing to re-apply must provide additional documentation of a change of status in circumstances or that other alternatives have failed. We request up to 45 days to review your application. All applications submitted must be in English.

All submitted information remains confidential.

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For questions about this program, please email info@lgsfoundation.org


By awarding this financial assistance, the LGS Foundation is making no recommendation as to the appropriateness or safety of a particular piece of equipment for persons with Lennox-Gastaut Syndrome, associated epilepsies, and other conditions. The LGS Foundation and its Board of Directors are not responsible for the safety and proper use of awarded equipment. Applicants are strongly encouraged to consult with medical professionals regarding the equipment requested. Application information will not be divulged without written consent from the applicant, parent, or legal guardian. We do ask that award recipients submit a photo showing the person with LGS using the equipment that may be used for awareness purposes for this grant program. Grant recipients will be identified by their first name only with the written permission of the parent or legal guardian.

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Updated 10/4/24 (SC)