The following list contains links to additional resources and third-party websites. The LGS Foundation is not responsible for the content or privacy policies of these external sites. While we try to only list sites here that we feel contain useful information for our families, a listing here should not be construed as an endorsement for any products or services they may provide.
Epilepsy 101: The Basics
Medical Equipment & Equipment Exchange
Service Dogs
Caregiver & Patient Family Support
- CareGiving.com
- Courageous Parents Network
- RareCaregivers.org
- AngelAidCares.org
- Circle of Care Guidebook for Caregivers with Rare and/or Serious Illnesses
- Child Neurologist New Visit Toolkit
- A Guide to Genetic Testing
- Respite Care Notebook
- Transition of Care from Pediatric to Adult Neurology
- Family Voices
- Center for Parent Information and Resources
- Parent to Parent USA
Education & Assistance Grants to Families
Seizure Diaries
Seizure Alert Devices
SUDEP Awareness
G-Tube Resources
- Does Your Child Need a Feeding Tube? Here’s What You Need to Know
- Help Your Child Thrive: A Guide to Tube Feeding for Parents
Ketogenic Diet & Dietary Therapies for Epilepsy
Accessible Playgrounds
Flights to get a Second Opinion
- Angel Flights East
- Angel Flights NE
- Miracle Flights
- Pediatric Epilepsy Surgery Alliance Surgical Evaluation Travel Scholarship
Rare Epilepsy & Rare Disease Resources
Research, Education, & Awareness resources
- Child Neurology Foundation
- American Epilepsy Society
- Epilepsy Foundation
- Epilepsy Phenome/Genome Project
- National Institute of Neurological Disorders and Stroke (NINDS)
- Seizures Are Signs
- Purple Day for Epilepsy Awareness
Disaster Relief
Hurricane & Natural Disaster Emergency Relief:
Eligibility: Rare diagnosis (this is not a disease-state specific program, but rather open to all rare diagnosed individuals)
Phone: 877-291-8082
Email: hurricane@rarediseases.org
Have a resource that you’d like to share with us? Please email us at info@lgsfoundation.org.
The above list contains links to third-party websites. The Lennox-Gastaut Syndrome (LGS) Foundation is not responsible for the content or privacy policies of these external sites. While we try to only list sites here that we feel contain useful information for our families, a listing here should not be construed as an endorsement for any products or services they may provide.
Updated 11/13/24 (KK)