Songs Inspired by her Brother Help Raise Awareness of LGS
On November 1, local artists and LGS community members joined the LGS Foundation in Santa Monica, California to help raise awareness and funds for Lennox-Gastaut Syndrome.
Meet the Artist: Christina Apostolopulos
Hi, my name is Christina and my younger brother Theo has LGS. I’m currently a musician living in Los Angeles, but I regularly visit my parents and Theo in Santa Barbara (just a couple of hours drive away). Theo is home to me – a respite from busy city life and a constant source of love and comfort.
Theo started having seizures at just a few months old. Early days were tough – I remember my mom, myself, and my younger sister Grace having to administer ACTH shots into Theo’s leg when he was still a baby (I was about 10, Grace 6). Sometimes a medication would work and the seizures would stop for a while, but they always came back. It became very disheartening, and over time it’s been harder to stay hopeful that they will ever stop. The hardest part of all is seeing someone you love be in pain.
I would love, more than anything else in my whole life, for Theo to stop having seizures. It would be amazing to communicate with him someday and really know his thoughts & feelings instead of just guessing. I wish that for everyone in the LGS community.
Advice for new families:
Finding other families who deal with LGS has been a tremendous resource for us. I would also say that it’s important to take care of yourself, otherwise, you’ll have a very hard time caring for your loved one with LGS.
More about Christina
Christina Apostolopoulos was born in Toronto and raised in Santa Barbara, California. She began studying guitar at age seven and eventually attended the Berklee College of Music, where she was recognized for her songwriting talents in addition to maintaining an active performance schedule in Boston. In 2015, Christina relocated to Los Angeles and quickly fell into a supportive community of artists. In 2018 she released her debut full-length album, The Only Thing I’m Good At. In addition to her solo career, Christina is a sought-after session musician and has contributed to various bands & recordings for artists. Her younger brother Theo has Lennox-Gastaut Syndrome (LGS) and has been a source of inspiration in her artistic life
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Updated 08/21/24 (AM)