A diagnosis of LGS can be deeply unsettling and may leave you at a loss as to where to turn for help and guidance. That’s why it’s important to get connected.

On this website, you will find information on how to get connected, find resources, and support communities for the challenging road ahead. If you need one-on-one support, please email us at familysupport@lgsfoundation.org. We are here for you.

Get Connected:

• Read Personal Stories About Those Fighting LGS
• Join Our Online Support Communities
• Connect with an LGS Patient Navigator or Family Ambassador
• Join One of Our Private Support Networks in the LGS Community Center

Get Supported:

• Get Caregiver Support
• Get Sibling Support
• Apply for our Patient Assistance Program
• Request or Download a New Family Welcome Kit
• Request or Download an About LGS Treatments Kit
• Request Information and/or Materials
• For Our Bereaved Families
• International LGS Support

You are not alone!

Updated 10/17/24 (AM)