Elevate Patient Assistance Program

The LGS Foundation’s Elevate Patient Assistance Program provides financial assistance to individuals with LGS to help pay for durable medical equipment or genetic testing not typically covered through insurance or other programs.

The Elevate Patient Assistance Program is open to residents in the United States. The grant cycle opens in February and stays open until we deplete all funds.

Families may submit an application for assistance once every five years. The maximum allowance per family, per application, is $1,500.

Items currently covered under this program include:

• Durable medical equipment (such as helmets, wheelchairs, orthotics, cooling vests, etc.)
• Genetic Testing
• Sensory Items (such as weighted blankets)
• Therapy Equipment (such as adaptive bikes)
• Communication Equipment (such as iPads)
• Seizure Alert Devices (provided in partnership with Danny Did Foundation)
• Guardianship expenses

The program does not cover medical co-pays, housing or food assistance, therapy costs, service animals, or respite assistance.

If someone requests an eligible item costing more than $1,500, the LGS Foundation will apply the awarded amount as the final payment toward that item.

​If you are applying for an iPad as an assistive communication device, please note the assistance program only covers either an iPad or an iPad mini (256GB, WI-FI only). If you have previously received funding for an iPad, you must wait a minimum of 8 years before reapplying for a new one. The LGS Foundation does not provide AppleCare insurance, but you may choose to add it later at your own expense. We recommend using a durable cover to protect the device. You may include the cost of the cover with your iPad application.

If you are seeking assistance for equipment not listed above, please contact info@LGSFoundation.org with additional details for eligibility review

The assistance application period begins each year in February. Applications cannot be accepted prior to the start of each grant cycle. Once the funds for the year are deplete, the program will close until the next cycle. We will post a notification on our website. Complete applications will be reviewed and approved on a first-come, first-served basis.

All documentation must be received for the review process to begin. 

The application must include the following documentation:

• Completed application
• Utility Bill in the name of the applicant or primary caregiver name for the location where the LGS patient resides
• A recent letter from the physician or health care professional treating the person with LGS, detailing the medical necessity of the request item
• A letter of denial from the insurance provider stating that the requested equipment was not covered (when applicable for all durable medical equipment)
• Any additional documentation pertaining to the nature of the request

Applications that are incomplete or lacking the required documentation will not be considered for review until all necessary materials are provided. All applicants will receive an email notifying them of the approval or denial of their application. If denied, applicants who wish to reapply must submit additional documentation demonstrating a change in their circumstances or evidence that other alternatives have been exhausted. Please allow up to 45 days for the review of your application. All applications must be submitted in English. Rest assured, all submitted information will be kept confidential.

For questions about this program, please email 

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^{By awarding this financial assistance, the LGS Foundation is making no recommendation as to the appropriateness or safety of a particular piece of equipment for persons with Lennox-Gastaut Syndrome, associated epilepsies, and other conditions. The LGS Foundation and its Board of Directors are not responsible for the safety and proper use of awarded equipment. Applicants are strongly encouraged to consult with medical professionals regarding the equipment requested. Application information will not be divulged without written consent from the applicant, parent, or legal guardian. We do ask that award recipients submit a photo showing the person with LGS using the equipment that may be used for awareness purposes for this grant program. Grant recipients will be identified by their first name only with the written permission of the parent or legal guardian.}

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Updated 01/24/25 (KK)