LGS is Hard. Finding Support doesn’t need to be! The LGS Foundation understands the importance of community connections and the impact that can have on your LGS journey. We strive to provide families with useful and relevant information, resources, and…
Long-Term Care Planning for Adults with Lennox-Gastaut Syndrome (LGS) Planning for care for your adult loved one with LGS may feel daunting at times. If you have feelings of concern or anxiety as you prepare for your loved one’s future,…
Looking for information, materials, and/or resources for Lennox-Gastaut Syndrome? Then you have come to the right place. The LGS Foundation is committed to providing a wealth of information for LGS caregivers, families, and professionals. We believe that everyone should have…
About LGS Treatments Kits are for families who are considering “What’s Next” in treatment. This comprehensive kit contains information on current treatments, clinical trials, and tips on maximizing your time with your loved one’s healthcare team. Please note that given…
A diagnosis of LGS can be deeply unsettling and may leave you at a loss as to where to turn for help and guidance. That’s why it’s important to get connected. On this website, you will find information on how…
What is a Clinical Trial? Clinical trials and research studies are done to scientifically evaluate a medical or surgical intervention. They are the primary way that researchers find out if a new treatment, like a new drug, diet, surgery, or…
We are here for you My name is Kathy Leavens and I lost my son, Matthew, to LGS in 2013. As you read, please know that you are not alone. Losing someone you love, especially a child, is painful and…
