Tracy Dixon-Salazar, PhD
Dr. Tracy Dixon-Salazar is a neuroscientist, geneticist, and patient advocate. Her desire to get her Ph.D. was inspired by her daughter, Savannah, who developed intractable seizures at the age of 2, which evolved into Lennox-Gastaut Syndrome (LGS) by the age…
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Kathy Leavens
Kathy Leavens serves as Senior Director Of Programs for the LGS Foundation. Kathy is a Certified Grief Educator. She was awarded the Leaders in LGS Award in 2016. Kathy also served as a Peer Support Specialist for the Family Support…
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Amber Mathas
Amber is a successful and goal-driven visionary with over eight years of demonstrated leadership and excellence in operations, program, and project management. She earned her Bachelor of Science in Marketing from the University of South Florida. After leaving her role…
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Tiffany Johnson, MBA
Tiffany has been a fundraiser for over 15 years, working in the non-profit and education sectors with an extensive background in major and principal gift acquisition and campaign strategy. She is passionate about helping organizations close to her heart build…
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Michael McConnell, PhD
Mike joined the LGS Foundation as Scientific Director in June 2024. In this role, he leads the Cure LGS 365 Research Grants Program, organizes the scientific program for our bi-annual research symposium Meeting of the Minds, assists with the LGS…
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Jennifer Griffin
Jennifer Griffin’s LGS journey began when her son Theo, now 19 years old, received that diagnosis at the age of 5 after living with Infantile Spasms since he was 3 months old. After graduating from the Arc of California’s Partners…
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Kayleigh Keen
Kayleigh came to the LGS Foundation in 2014 after her son’s diagnosis of Lennox-Gastaut Syndrome. Her previous experience with nonprofits, outgoing personality, and obvious passion for helping others made her the perfect candidate for the Foundation’s Family Ambassador program. After…
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Hanna Jorgenson
Hanna is the communications coordinator at the LGS Foundation and is driven by her passion for making a positive impact in people’s lives. With a strong background in managing social media and communications, Hanna brings valuable experience from both the…
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Quinn Edwards
Quinn is the Executive Assistant at the LGS Foundation supporting the Executive Director, Tracy Dixon-Salazar, and has over ten years of experience in the administrative field . Prior to her role at the LGS Foundation, Quinn worked in research healthcare…
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Sami Cox
Sami Cox is an Administrative Assistant at the LGS Foundation, where she leverages her eight years of administrative support and project management experience to drive meaningful change within the organization. With a deep commitment to making a lasting and positive…
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