PROGRAMS & SERVICES
OTHER RESOURCES

Council for Exceptional Children: Organization dedicated to
improving the special education system.

Idea 2004 Parent Guide: A comprehensive guide to the Individuals
with Disabilities Act (adobe acrobat required).

LGS Foundation Educational Guide for Teachers: Provided for
parents to download, print, and hand out to teachers and staff who
work with their LGS child in an effort to better understand LGS
(adobe acrobat required).

Wrights Law: Resources which provides case studies, information
and advocacy for special education.

Special Education Advocacy
EDUCATION & ADVOCACY
LEGAL SERVICES
MEDICATION & PRESCRIPTION ASSISTANCE
PROGRAMS
SAFETY, ALERTS & DETECTION
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COPYRIGHT LGS FOUNDATION, 2013
ADULTS & LGS WEBSITE
Information dedicated to adults living with LGS
ART THERAPY PROGRAM
The LGSF offers an art therapy program for individuals with LGS in the form of a custom
workbook and art supplies.
COMMUNITY FORUM & FACEBOOK PAGE
Caregivers from across the world can interact with one another through the LGS
Foundation's community forum or facebook pages.
GIVE KIDS THE WORLD
Each year, the LGSF awards one LGS family an all-expense paid trip to Give Kids the World
Resort in Orlando, FL
EQUIPMENT EXCHANGE
Are you in need of, or do you have slightly used equipment such as a helmet, wheelchair,
stroller or bed that you would like to donate to another family?  The LGSF can help facilitate
the exchange and pay for most shipping costs.
Visit our community forum to learn more.
LGS MENTOR PROGRAM
The LGSF trains individuals to educate others about LGS And seizure-first aid in their
communities
LGS EDUCATIONAL AND AWARENESS MATERIALS
Free, comprehensive printed materials on LGS available to order free of charge
LGS HOPE
A new website that offers additional local resources, a professional monthly newsletter, and
more
LGS FAMILY & PROFESSIONAL CONFERENCE
Held every 18 months, the LGSF holds an educational conference on Lennox-Gastaut
Syndrome for families and professionals
MEET & GREET
Join dozens of other LGS families at our annual Team LGSF Meet & Greet, held the
evening prior to the National Walk for Epilepsy® in Washington, DC.
   
REGIONAL SUPPORT GROUPS
The LGSF organizes regional support groups across the United States.
SEED RESEARCH PROGRAM
The LGSF awards seed grants to young investigators and physician residents ranging from
$10,000 to $20,000