Navigating your way through the educational system can be difficult when you have a
loved one with LGS. There are laws in the United States, however, that protect the rights
of a disabled student.

The Individuals with Disabilities Education Act (IDEA) states that every child with a
disability must be provided with an adequate public education. IDEA mandates that all
children will receive a public education regardless of the severity of their disability.
School systems do not have the option to decide whether or not to give a disabled
student the appropriate services.

An Individual Education Plan (IEP) should be given to every special education student in
the U.S. The IEP lists the goals, transition services, and plans for the student. These are
legal documents and are provided for teachers and staff to follow. IEP's are reviewed
annually and can be amended during a CSE hearing. A CSE hearing is a meeting in
which the teachers, parents, special education director, nurse (if applicable), or anyone
else involved in the child’s education, will meet to make changes to the IEP if services
are not being administered or if services need to be reduced.  

IDEA also states that parents or legal guardians who feel their child is not receiving the
appropriate services are entitled to take legal action with the school in order to get the
right services. This can include incorrect classroom placement, failure to provide
adequate staff for the child, or failure to provide services such as PT, OT, speech, etc. A
parent or guardian should know that these federal laws exist so the child does not get
mistreated or misplaced. If you feel that the school is not providing adequate services,
you can take legal action or hire an advocate for your child.

It is very important for there to be communication between the parents and the school
board. Failure to communicate properly can result in confusion and misplacement. As a
parent of a child with LGS, it is important for you to inform the teachers and
administration of the characteristics of LGS. A helpful way to make sure teachers and
staff are informed can be by downloading our
Guide to LGS. pdf.

The Amercans with Disabilities Act (ADA) prohibits discrimination of a person with a
disability in state and local governments, public areas, and businesses that serve the
general public. This also includes discrimination by child care programs that are run by
private businesses or are funded by a government agency. One type of exception would
be religious organizations.

For more information on education, visit:
www.wrightslaw.com
About Lennox-Gastaut Syndrome |
Community Forum |
Donate |
Media |
Events |
Resources |
Treatments |
Stories