Home
About LGS
Community Forum
Treatments
Donate
Resources
Media
Events
Stories
About Us
Our Board
Christina SanInocencio
About LGS
Community Forum
Treatments
Donate
Resources
Media
Events
Stories
About Us
Our Board
Christina SanInocencio
Since the young age of seven years old, Christina has played the role of a
sister, caregiver, and advocate to a person with LGS. Her younger brother
Michael was diagnosed with epilepsy at only thee years old and received the
diagnosis of Lennox-Gastaut syndrome at age five. Christina watched
Michael have endless seizures day after day, year after year, and grew up
explaining what LGS was to her peers, teachers, and relatives. Living with a
sibling with LGS has given Christina the unique ability to help other families
who have a loved one in the same position.
sister, caregiver, and advocate to a person with LGS. Her younger brother
Michael was diagnosed with epilepsy at only thee years old and received the
diagnosis of Lennox-Gastaut syndrome at age five. Christina watched
Michael have endless seizures day after day, year after year, and grew up
explaining what LGS was to her peers, teachers, and relatives. Living with a
sibling with LGS has given Christina the unique ability to help other families
who have a loved one in the same position.
After graduating Magna Cum Laude with a BFA in Communications, Christina started a
career in television working on many national television shows from ABC to E!
Entertainment to the SPEED Network. Although she enjoyed her work, she felt
empowered to use her life experience along with her professional experience to further
her mission of raising awareness about LGS through media platforms. After planning to
produce a documentary about LGS, Christina grew quite frustrated when she discovered
the lack of resources and information available to those who are living with the disorder.
That was when, in 2007, she enlisted her mother to help her form a national organization
dedicated specifically to Lennox-Gastaut syndrome. Together, they aimed to provide
much needed information and to help families connect with each other and share stories.
The LGS Foundation was born in November of 2007 and has grown to be an
international network of individuals who are looking for support, information, guidance,
and answers.
Christina has many goals in mind for the foundation, one of which still includes producing
the documentary on Lennox-Gastaut syndrome. Other goals include raising money for
research in epilepsy and LGS, and continuing to reach even more families who are
affected. She makes it her priority to answer every single e-mail that is received, and to
put LGS families in touch with each other who have similar experiences or live in the
same area.
Christina's ultimate wish is that LGS will one day become a disorder of the past. But until
then, she will continue to help raise awareness about LGS and offer support to the
thousands of families who face this devastating disorder everyday.
career in television working on many national television shows from ABC to E!
Entertainment to the SPEED Network. Although she enjoyed her work, she felt
empowered to use her life experience along with her professional experience to further
her mission of raising awareness about LGS through media platforms. After planning to
produce a documentary about LGS, Christina grew quite frustrated when she discovered
the lack of resources and information available to those who are living with the disorder.
That was when, in 2007, she enlisted her mother to help her form a national organization
dedicated specifically to Lennox-Gastaut syndrome. Together, they aimed to provide
much needed information and to help families connect with each other and share stories.
The LGS Foundation was born in November of 2007 and has grown to be an
international network of individuals who are looking for support, information, guidance,
and answers.
Christina has many goals in mind for the foundation, one of which still includes producing
the documentary on Lennox-Gastaut syndrome. Other goals include raising money for
research in epilepsy and LGS, and continuing to reach even more families who are
affected. She makes it her priority to answer every single e-mail that is received, and to
put LGS families in touch with each other who have similar experiences or live in the
same area.
Christina's ultimate wish is that LGS will one day become a disorder of the past. But until
then, she will continue to help raise awareness about LGS and offer support to the
thousands of families who face this devastating disorder everyday.